Recent Publications

Shields A, Chen SC, Kaur MN, Rowen D, Layton A, Thiboutot D, Tan J, Barbieri JS (2024) Evaluation of the measurement properties and validation of the Skindex-16 among patients with acne. Journal of the American Academy of Dermatology, 91(1), 144-146. 

Mukuria C, Rowen D, Acaster S, McGarry LJ, Lou Y, Sosnay PR, Quittner AL (2024) Psychometric performance of the CFQ-R-8D compared to the EQ-5D-3L and SF-6D in people with cystic fibrosis. J Patient Rep Outcomes, 28;8(1), 24. 

Rowen D, Carlton J, Terheyden JH, Finger RP, Wickramasekera N, Brazier J (2024) MACUSTAR Consortium. Development and Valuation of a Preference-Weighted Measure in Age-Related Macular Degeneration From the Vision Impairment in Low Luminance Questionnaire: A MACUSTAR Report. Value Health, 27(5), 642-654. 

Kharroubi S, El Harake M, Beyh Y, Zaiter B, Dawoud D, Mukuria C & Rowen D (2024) Estimating the SF-6Dv1 Value Set for a Population-Based Sample in Lebanon. Value in Health Regional Issues, 42, 100977.

Matza LS, Stewart KD, Fournier M, Rowen D, Lachmann R, Scarpa M, Mengel E, Obermeyer T, Ayik E, Laredo F, Pulikottil-Jacob R (2024) Assessment of health state utilities associated with adult and pediatric acid sphingomyelinase deficiency (ASMD). Eur J Health Econ, 25(8), 1437-1448.

Aragon MJ, Gravelle H, Castelli A, Goddard M, Gutacker N, Mason A, Rowen D, Mannion R & Jacobs R (2024) Measuring the overall performance of mental healthcare providers. Social Science and Medicine, 344, 116582. 

Bailey C, Martin H, Raghunandan R, Dalziel K, Howard K, Mulhern B, Petrou S, Rowen D, Salisbury A, Viney R , Lancsar E et al. (2024) The RETRIEVE checklist for studies reporting the elicitation of stated preferences for child health-related quality of life. PharmacoEconomics, 42(4), 435-446. 

Powell, P. A. (2024) Incorporating public and wider stakeholder views in the design of health state valuation studies in adults and young people: an undervalued resource? Expert Review of Pharmacoeconomics & Outcomes Research, 24(5), 581–584. 

Carlton, J., Powell, P.A., Broadley, M. et al. (2024) Development of a new health-related quality of life measure for people with diabetes who experience hypoglycaemia: the Hypo-RESOLVE QoL. Diabetologia, 67, 1536–1551.

Powell, P. A., Rowen, D., Keetharuth, A., Mukuria, C., & Shah, K (2024) Who should value children's health and how? An international Delphi study. Social science & medicine (1982), 355, 117127. 

McDool, E., Powell, P. & Carlton, J (2024) Measuring health related quality of life (HRQoL) in Lysosomal Storage Disorders (LSDs): a rapid scoping review of available tools and domains. Orphanet Journal of Rare Disorders, 19, 252.

Williams P, Herring TA, Yokota RTC, Maia T, Venkatesan S, Marcus JC, Settergren G, Arnetorp S, Lloyd A, Severens JL, Varni JW, Dixon S, Hamusankwa L, Powell PA, Taylor S, Ware Jr JE, Krol M (2024) The Association Between Physical Distancing Behaviors to Avoid COVID-19 and Health-Related Quality of Life in Immunocompromised and Nonimmunocompromised Individuals: Patient-Informed Protocol for the Observational, Cross-Sectional EAGLE Study. JMIR Research Protocols, 13, e52643.

Feng YS, Kohlmann T, Peasgood T, Engel L, Mulhern B, Pickard AS (2024) Scoring the EQ-HWB-S: can we do it without value sets? A non-parametric item response theory analysis. Quality of Life Research, 33(5), 1211-22. 

McDool E, Mukuria C, Peasgood T (2024) Psychometric performance of the EQ Health and Wellbeing short (EQ-HWB-S) in a UK population sample. Value in Health. 

Bailey C, Dalziel K, Jones R, Hiscock H, Devlin NJ, Peasgood T (2024) Quality of Life in Kids: Key evidence to strengthen decisions in Australia (QUOKKA) Project team. The validity of the EuroQol Health and Wellbeing Short Version (EQ-HWB-S) instrument in parents of children with and without health conditions. Pharmacoeconomics, 42(Suppl 1), 163-79. 

Peasgood T, Bailey C, Chen G, De Silva A, De Silva Perera U, Norman R, Shah K, Viney R, Devlin N (2024) Rationale, conceptual issues, and resultant protocol for a mixed methods Person Trade Off (PTO) and qualitative study to estimate and understand the relative value of gains in health for children and young people compared to adults. Plos one, 3;19(6), e0302886. 

Carlton J, Powell P, Rowen D, Williams C, Griffiths AW, Hobson E, McDermott C (2024) Development of a novel patient reported outcome measure for health-related quality of life in amyotrophic lateral sclerosis (PROQuALS): study protocol. Health Qual Life Outcomes, 30;22(1), 69. 

McDool E, Carlton J, Powell PA, Coates E, Knox L, Mayberry E, Appleby N, Griffiths AW, Hobson E, McDermott CJ (2024) Measuring Health-Related Quality of Life in Amyotrophic Lateral Sclerosis: A Systematic Review and Conceptual Framework. Neurology, 103(2), e209549. 

Ta A, Van Landeghem B, Tsuchiya A (2024) Eliciting public preferences across health & wellbeing dimensions: An equivalent income value set for SIPHER-7. Health Economics.

Bailey, C., Dalziel, K., Constable, L., Devlin, N. J., Hiscock, H., Skouteris, H., & Peasgood, T (2024) The performance of the EQ-HWB-S as a measure of quality-of-life of caregivers in families that have experienced adverse events. The European Journal of Health Economics, 1-15. 

Wickramasekera, N., Hole, A.R., Rowen, D., Wailoo, A. and Keetharuth, A.D (2024) Exploring the factors that drive clinical negligence claims: stated preferences of those who have experienced unintended harm. The Patient-Patient-Centered Outcomes Research, pp.1-17. 

Søholm U, Broadley M, Zaremba N, Divilly P, Nefs G, Carlton J, Mader JK, Baumann PM, Gomes M, Martine-Edith G, Pollard DJ, Rath D, Heller S, Pedersen-Bjergaard U, McCrimmon RJ, Renard E, Evans M, de Galan B, Forkmann T, Amiel SA, Hendrieckx C, Speight J, Choudhary P, Pouwer F (2023) Hypo-RESOLVE consortium. Psychometric properties of an innovative smartphone application to investigate the daily impact of hypoglycemia in people with type 1 or type 2 diabetes: The Hypo-METRICS app. PLoS One, 17;18(3), e0283148. 

Rowen D, Mukuria C, Bray N, Carlton J, Cooper S, Longworth L, Meads D, O'Neill C, Yang Y (2023) UK Valuation of EQ-5D-5L, a Generic Measure of Health-Related Quality of Life: A Study Protocol. Value Health, 26(11), 1625-1635. 

Horwood A, Heijnsdijk E, Kik J, Sloot F, Carlton J, Griffiths HJ, Simonsz HJ (2023) A population-level post-screening treatment cost framework to help inform vision screening choices for children under the age of seven. Strabismus, 23, 1-16.

Mukuria, C., Peasgood, T., McDool, E., Norman, R., Rowen, D., & Brazier, J. (2023). Valuing the EQ Health and Wellbeing Short Using Time Trade-Off and a Discrete Choice Experiment: A Feasibility Study. Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research, 26(7), 1073–1084. 

Franklin M & Hernández Alava M (2023) Enabling QALY estimation in mental health trials and care settings: mapping from the PHQ-9 and GAD-7 to the ReQoL-UI or EQ-5D-5L using mixture models. Quality of Life Research, 32(10), 2763-2778.

Carlton, J., Powell, P.A. & Project HERCULES Carer Group. Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN. Health Qual Life Outcomes 20, 57 (2022).

Franklin M, Hunter RM, Enrique A, Palacios J & Richards D (2022) Estimating cost-effectiveness using alternative preference-based scores and within-trial methods : exploring the dynamics of the Quality-Adjusted Life-Year using the EQ-5D 5-level version and Recovering Quality of Life Utility Index. Value in Health, 25(6), 1018-1029.

Rowen D, Powell P, Mukuria C, Carlton J, Norman R & Brazier J (2021) Deriving a preference-based measure for people with Duchenne Muscular Dystrophy from the DMD-QoL. Value in Health, 24(10), 1499-1510.