News and events
Presentation of ScHARR Outcomes work at ISOQOL
Data collection for the UK EQ-5D-5L valuation study to start in October 2022
Monday, 15 August 2022
A new framework to identify quality of mental healthcare
Thursday, 28 July 2022
Development of a new measure of health and wellbeing (EQ-HWB)
Members of the ScHARR Outcomes team have led the international development of a new broader generic measure of health and wellbeing, the EQ Health and Wellbeing (EQ-HWBTM) which has been designed to be used in economic evaluations across health, social care and public health.
In addition to estimating quality-adjusted life years, the new EQ-HWB aims to measure factors such as autonomy and relationships that are important to patients and care users. In going beyond the commonly used measures of health-related quality of life (HRQOL), the EQ-HWB offers several important advances. Assessing broader aspects of quality of life (QOL) for the recipients will enable their care needs to be better understood in terms of social care (e.g., improved relationships, greater independence, and control). Furthermore, unlike existing tools, it aims to consider the impact of carers’ quality of life.
The EQ-HWB was developed using qualitative evidence from health and care service users and carers, along with psychometric evidence, collected in six countries (Argentina, Australia, China, Germany, United Kingdom, United States). The EQ-HWB is designed for evaluating interventions in healthcare, public health, and social care to inform decision making both within and between these sectors.
The extensive and important body of work, showcased in the April themed issue of Value in Health “Expanding the Scope of Value for Economic Evaluation”, examines the development of the new generic measure across six articles, four of which are led by current and former members of the ScHARR Outcomes team, including John Brazier, Tessa Peasgood, Clara Mukuria and Jill Carlton.
You can read the articles here:
For further information and to find out about using the instrument, please also see the EQ-HWBTM page on the EuroQol website
Thursday, 07 July 2022
ScHARR researchers are developing a new patient reported outcome measure (PROM) to measure the impact hypoglycaemia has upon quality of life (QoL) for people living with diabetes. The work forms part of the international Hypo-RESOLVE project (https://www.hypo-resolve.eu/project). Hypo-RESOLVE brings together 23 partners from 9 European countries and the US, and comprises leading academic experts, pharmaceutical and device manufacturers, as well as patient organisations.
Monday, 23 May 2022
ScHARR Outcomes researchers will be presenting at the Health Economists’ Study Group Summer 2022 Meeting which will take place from 22nd-24th June 2022 at the University of Sheffield.
Clara Mukuria will present Measuring and valuing health and quality of life using the EQ Health and Wellbeing Short: perspectives from members of the NICE Public Involvement Programme Expert Panel and the paper Using discrete choice experiments to compare personal and social preferences for health and wellbeing outcomes by Tara Wickramasekera, Becky Field, An Ta and Aki Tsuchiya will also be presented.
Monday, 21 March 2022
New preference-based measure for quality of life in Duchenne muscular dystrophy
A new ScHARR Outcomes developed preference-based measure for measuring quality of life in Duchenne muscular dystrophy is available for use! The 14-item DMD-QoL and 8-item DMD-QoL-8D assesses aspects of physical, psychological, and social quality of life in boys and men with Duchenne. The measure is designed for use as a proxy measure from 7 years and upwards, and a self-report measure for 10 years and upwards.
The DMD-QoL was developed as part of award-winning Project HERCULES, recipient of a EURODIS Black Pearl award for patient engagement, and led by charity Duchenne UK. The measure has been translated into over 27 languages and is available to use via Oxford University Innovation Health Outcomes.
Open access papers describing the development of the DMD-QoL and the DMD-QoL-8D are available to read in Neurology and Value in Health, respectively. The project was informed by an earlier review by the ScHARR Outcomes team into quality of life tools in Duchenne, which found the evidence for existing tools lacking. This review is available to read, open access, in Health and Quality of Life Outcomes. Qualitative work supporting the development of the new measure is under review and should be available soon.
Monday, 21 March 2022
Hypo-RESOLVE podcast link
New Podcast Series: Patient Engagement in Research Initiatives – The Hypo-RESOLVE Approach
ScHARR Outcomes researchers have starred in a new podcast series as part of the pan-European project Hypo-RESOLVE; a project designed to reduce the burden and consequences of hypoglycaemia in people living with diabetes. This eight-episode series shines a light on the value of patient engagement in general and the innovative way the Hypo-RESOLVE project approaches patient engagement. Scientists, clinicians and members of the Patient Advisory Committee (PAC) discuss the progress in the different work areas of the project and give valuable insight into the experiences of including people with diabetes in research initiatives from both perspectives.
ScHARR Outcomes researchers, Dr Jill Carlton and Dr Phil Powell star in Episode 7 on the development of patient-reported outcome measures (PROs) in hypoglycaemia. They talk with Ken Tait and Renza Scibilia from the Hypo-RESOLVE Patient Advisory Committee (PAC) about PwD involvement in the development of PROs. You can listen to the episode here.
Wednesday, 27 May 2020
International experts launch a foundational set of standards to measure and improve psychotic disorders care globally
Recovering Quality of Life Measure (ReQoL-20) chosen by an international panel of experts for the new set of standards to measure and improve psychotic disorders globally.
The Health Economists’ Study Group Summer 2022 Meeting will be hosted by the University of Sheffield, from 22nd-24th June 2022.
Fifth National Patient Reported Outcome Measure (PROMs) Annual UK Research Virtual Conference
Wednesday 16 and Thursday 17 June 2021 at The University of Sheffield
Find out more about the event.